Today, I’d like to know your thoughts on traveling. Be it a few hours, overnight or weeks at a time.  For those of you on dialysis, logisticaly, you surely have more planning. It must be very confusing for the newly diagnosed, as well. At this point in my journey, I…

A small, nondescript headache. An over-all tingling sensation. Achy joints and a general ‘something doesn’t feel right’ mood. After all these years, you’d think I would know these are my pre-cursors to developing a fever. Nope, not me. These feelings are followed by picturing various fruit juices (which I’m not…

PKD affects thousands in the United States and millions worldwide – and yet, many people have never heard of it. Learn basic facts about what PKD is, how it impacts people and how the PKD Foundation helps. The more people who know about PKD, the closer we can get to…

As hard-headed and determined as I think I am, it’s always a surprise to find out that may not be the way I appear in public! The one trying to make one trip with arms loaded, the one used to grabbing things from a top shelf for somebody, the one…

Time marched on…more infections, more antibiotics, more life. I read everything I could get my hands on about this PKD. Computers weren’t as available so it was a lot of footwork with even more dead ends. I was persistent and determined to get as much information as possible. Knowledge to me…

This is a wonderful way to make a fellow human feel good! Selfishly, it will make you feel the same. I passed a man walking on a back road today and we nodded and smiled. On my trip back, I slowed, kind of stuck my head out the window of…

Staring wide-eyed at each other in sheer shock, standing in a dark parking lot with the cold drizzle of the rain blowing across my sister and myself is a memory I’ll never forget. It was like a really bad dream.  I remember hugging my friend later and whispering in her…